Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Thursday, September 29, 2011

SWIM

Benson loves swimming lessons.

Claire has swimmer's ear.

No more swimming for Claire during Benson's swimming lessons.

Sometimes I feel like Claire can't win!!

We go camping.

She gets sick.

Boating.

She gets diarrhea.

Swimming.

Swimmer's ear.

Good thing she is one TOUGH little COOKIE!


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