Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Wednesday, September 21, 2011

Prayer time

A few things Claire said in her prayer:

1) please bless Daddy that he can paint our family room yellow.

2) please bless that we can all have a lovely afternoon.

3) please bless me that I can always sit in this seat and Benson won't whine about it.

AMEN!

1) in progress as I write

2) it was

3) they're both getting less whiney about who sits where...most days

prayers are answered!!

1 comment:

Grandpa Terry and Diana said...

She certainly has a great personality. She doesn't let anything excape her attention and we love her for all of the great things she does and for all of the things she prays for.

Keep it up, Claire. We love you.