Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Monday, November 28, 2011

Monday update

Claire had a great day. We had her preschool friends at our house today and she (and Benson) loved having friends over for school (and play)! Everything went well for her antibiotic this afternoon and the blood cultures are still negative. By tomorrow, we should know the final result...but I'm really thinking it will be negative and we'll mark this one off as random/weird/unexplained fever that came and went! I'd rather mark it off as such (even with an ED visit attached) than still be in the hospital with follow-up antibiotics for the next 2 weeks!

Mabel has officially taken her first 5-6 steps in a row! She's not cruising around with the best of them, but she is walking in between encouraging parents and siblings with many praises following each arrival!! Nothing quite like watching a little one learn to walk. Love it. Cherish it.

And the tooth fairy totally blew it. Of all nights, Benson without telling us decided to part with his beloved front tooth Saturday night...the night we took Claire into the hospital. He couldn't believe it. Why hadn't the tooth fairy delivered? I got out of that one okay but then COMPLETELY spaced that last night....the tooth still awaited under the pillow!! Seriously? Double OOPS. Good thing he's understanding little guy and still has hope for a future investment--but not without a little explanation. He needed to know what was going on with this tooth fairy and why she wasn't doing her job!! Tonight, along with the tooth, there is a letter that reads: Dear tooth fairy. Why aren't you giving me money? Write back. From Benson. ______________________________________________________
The pencil is under his pillow as well incase she doesn't bring one with her.

Dear tooth fairy. Please don't forget tonight....for both of our sakes. I'm running out of excuses for YOU and have a boy wanting to believe! From Mom.

3 comments:

Grandpa Terry and Diana said...

Tooth fairys have it rough these days.

Glad to hear that Claire had a better day.

~adelle said...

I tell ya what, sometimes it is hard to remember everything. :) I can barely remember to take libby to school. I don't know how you are supposed to remember to sneak a tooth out from under a pillow! EEK.

Glad Claire is feeling better. Strange.

Ria said...

I found with our kids the tooth fairy often put the money under the pillow in such a way that the kids couldn't see it easily in the morning. Funny that when I went to look after a quick stop at my purse, I was always able to find it obscurely tucked oddly somewhere like in the pillowcase. Good thing the tooth fairy didn't TOTALLY forget....