Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, November 6, 2010

bed time song

Claire's new favorite bed time song:

"I'm so glad when baby kicks out
Glad as I can be
Clap my hands and shout for joy
And climb upon her knee
Put my arms around her neck
Hug her tight like this
Pat her cheeks and give her what???
A great big KISS!!"

She laughs the whole way through with excitement and because she thinks she's so silly (and smart) for changing the lyrics as she did!!
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2 comments:

Terry said...

Claire is quite the talented little girl. She is just a chip off the old block. She comes from strong, longlasting, good looking stock. We love her just the way she is.

November 6, 2010 at 9:13 PM
John & Shauna said...

So cute! I didn't realize you are that close to having your baby. We are so excited to hear the "news". Good luck! YOu look adorable.

November 7, 2010 at 4:17 PM

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