Oct 13

Wow. Life gets a lot busier when you're home and actually have other responsibilities! Too bad "life" still has be taken care of--other things just seem so insignificant right now compared with the real PEOPLE that REALLY matter. Thankfully we still have family here to help out until we can get back into a some-what normal routine!

Good news is Claire slept like a champ last night! She has been so tired and really has a lot of catching up to do in the sleep department. We sneaked into her room early this morning to give her first morning shot. We tried to wake her up a little so she wouldn't be so shocked by the sudden poke, but she wouldn't wake up. A few seconds later she did. Poor girl. Talk about a rude awakening. She was so tired though, that she whimpered a few times and fell right back asleep until I pulled her out of bed to go to dialysis at 8:45 a.m.

She really hasn't had a happy day since then. She seems to be in a lot of pain still. She was sad all day on dialysis; she moaned a lot and wasn't consoled or entertained by anything. She simply doesn't feel good. It's not a surprise. Open heart surgery is not a minor procedure and the clot in her leg is really bothering her too. She won't bear any weight on her legs at all. She pretty much wants to be held and comforted most of her awake time, and I am happy to fulfill her request. Love and comfort is something she just NEEDS a lot of right now. There's nothing else I'd rather be doing.

She hasn't had the strength or desire to crawl or roll over yet either. It's really sad. I feel like we're starting all over again with many areas of her development. Physical strength and language are the two that have definitely suffered. The only word I can remember her saying today is momma, and she only cries that out when she's in pain.

Just not a happy day. I'm sure a much better day than it would have been, had we still been in the hospital though. But she still has a ways to go before I can really say we have our good old Claire-bear back.

Benson is seriously the best medicine this girl could have right now. Like I said, she was miserable all day on dialysis until Benson showed up a half hour before she was finished. Then it was like night and day. She immediately started smiling, playing with him, laughing at him! The light in her eyes just came back. I'm going to have to start bringing him with me every day! You just gotta love that boy! I know she does.