Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Saturday, October 24, 2009

Oct 24

It was a good day. Claire got some daddy-daughter time this morning on dialysis. It's funny how even though I really need the break from taking her to the hospital each day, I still miss her each Saturday morning and am so excited when they come home!

We got Claire a new coat today for the freezing winter we have ahead. We bought a 2T coat on clearance last year and it still drowns her! 12 month fit perfectly. We'll save the 2T for next year.

2 comments:

Philip, Melissa, & Summer said...

That snow looks like fun. Glad to see her having some fun.

Ryan & Keri said...

It's so wonderful and heart-warming to see Claire-girl full of life!