Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, October 17, 2009

Oct 17

It's been another great day here. The sun even peeked through and warmed us up just a smidgen. Claire's leg certainly seems to be improving. She walked alone today but still mostly enjoys pushing her stroller. They will do another ultrasound of her leg on Monday to see what progression has been made. We are expecting good news!


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4 comments:

Philip, Melissa, & Summer said...

Fall leaves, how fun! We are having some cooler weather too, and it almost feels like fall here minus the leaves on the ground.

Glad to see her up and about.

October 17, 2009 at 9:32 PM
Erik and Jaime said...

Korbin enjoyed the picture of Benson in the leaves. He wanted to know where they all came from.

October 18, 2009 at 12:39 PM
~adelle said...

YES! I love to see them playing. Hope today is a day of rest for all of you! Loves.

October 18, 2009 at 1:24 PM
Ryan and Keri said...

Natalie, it's so good to hear that sweet Claire in all of her sunshine has returned. YEA for prayer--it's miraculous and such a blessing. We love you guys.

October 18, 2009 at 3:42 PM

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