Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Wednesday, October 21, 2009

Oct 21

Wow. Nothing significant happened today! I haven't been able to say that for a while. It was a very ordinary day for us and we're happy for it!

The kids got a special care package from one of Jared's work associates in Australia. What was their favorite part about the package of foreign treasures: the box. Playing in, around, on top of, and underneath a box for a good forty-five minutes is a pretty good indicator that all is well. For today, we'll take it!


(Benson is such a 'poser'!! He did the whole arm/lean into Claire thing on his own. CHEESE!!)
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2 comments:

Philip, Melissa, & Summer said...

I love it. How great to see them having fun.

October 21, 2009 at 10:00 PM
~adelle said...

I think the cardboard box is still on the list of the 10 greatest inventions of all time. Mabye I should google it to make sure. :) Anyway, my kids sure love them too! Glad today was ordinary!

October 22, 2009 at 12:46 PM

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