Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Wednesday, October 28, 2009

Oct 28

Claire was such a cuddle bug today! I loved it! For almost the entire 3 hours on dialysis, she sat on my lap and we sang, played with baby, watched a little eee wee (as she calls it), and laughed! Who could complain about that! She is such a sweet girl. She said "I love you" with more than just her words today. I like to think a little "thank you" was also found in one of those snuggles too!

Didn't get a picture of it...the only picture of the day was this:


This is Jared's truck FULL of 20 + garbage bags of leaves. And this is all from the front yard. We haven't even started the back yard yet!
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2 comments:

** Adrian ** said...

I bet you wish you could bottle up days like this & pull them out on tough days! I love reading your daily updates & seeing all the fun photos of your DARLING kids!!!

I'm so glad Claire is doing SOOO well! Can you believe it's almost been a month since she had her surgery?? It's nuts!

That photo of all the garbage bags of leaves is NUTS!! What a HUGE JOB!! We haven't been able to rake our leaves yet. . . we need them to FALL OFF OUR TREES first!! Hopefully snow doesn't come to stay before this happens. It'll sure leave a mess for the spring!!

October 28, 2009 at 7:43 PM
Wendy Beebe said...

Have you ever heard the Sandra Boynton CDs? I'm sure you've seen her books. There are two in particular that were made into songs on her CDs (Rhinoceros Tap and Philadelphia Chickens). The songs/books are entitled "Barnyard Dance" and "Pajama Time". Anyway, I don't know if you can have a CD player in the room during dialysis, but the thought was to play these CDs to sing along with and the two books for her to see the songs "come to life".

November 4, 2009 at 5:33 PM

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