Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, December 12, 2009

Day 89

Claire had a pretty good day today. She definitely has some discomfort with certain positions and won't pull herself to stand. But after we help her get up, she's off and running! They said it should take a couple weeks for the fracture to heal, so hopefully it keeps getting better from here.

We got a lot done today. I did the laundry and went through all the toys (which is a huge task in and of itself). Jared got his office and Benson's room put back together and hung up the doors. And the kids loved having their playroom back! The cozy, new carpet made playing all the more fun. I decided I just need about 5 Saturdays all in a row and I might actually get caught up on almost everything!



Thanks Bloom for the fabulous online auction!
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1 comment:

Anonymous said...

I would LOVE to hold an onoline auction for your darling kids. Are you up for another one? I will find all the sponsers and get it going! Email me at shannon_staker@hotmail.com... You can check out my blog at www.shannonmakesstuff.blogspot.com!

December 12, 2009 at 9:52 PM

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