Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, December 19, 2009

Dec 19 6:00 pm

She has got a lot of extra fluid on her. Over a liter of extra fluid is being stored just about anywhere it can find room in her body. Instead of the Princess and the Pea, we just need the Princess to PEE!!

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2 comments:

John & Shauna said...

Makes you realize how much we take for granted going to the bathroom, huh? I'm so glad you had a chance to see her awake. YEAH! Thanks for the update.

December 19, 2009 at 4:36 PM
Melissa said...

Poor thing! I hope that kidney kicks into high gear soon!

December 19, 2009 at 8:43 PM

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