Things have improved. The combination I mentioned in the last post is working wonders to get fluid off! In one hour, she drained 500 mls!! That's a lot. A ton. Huge. Almost too much all at once. So they stopped the lasix and diuretic and will reevaluate again this afternoon to see what dose or how often she should be on it. We want the fluid off, but not quite that fast. She drained approx. 500 the first hour, 400 the next, and 300 last hour. So it's going down, but still, that's A LOT of fluid to drop in 3 hours. But what a difference Clarie is feeling already. She sat up with Dad and read a few books, could actually open her eyes all the way, and even had music time with a music therapist. She's feeling much better already. Still a ways to go and not what we'd call comfortable at all yet. You can see that by just looking in those eyes. But she's soooooo much better than this morning and actually starting to look like herself again! At least now we know what works for her. Just got to keep in all in moderation.
Her new words: me bye bye. go. bye bye. all done. all better.
You certainly can't blame the sweetest one for feeling like that.
10 comments:
Must be frustrating. Can't get enough fluid out- then too much. Poor little angel. It's miserable just to have swollen ankles, let alone being that swollen all over.
oh...i'm so, so glad the fluid is coming off. hopefully it just gets easier from here.
thanks so much for all the updates, natalie.
Awesome! So happy to hear that she has some of that fluid gone! You are in good hands out there! And she looks so sweet with Daddy...what a trooper she is!
It's amazing how much better she looks. It's good to see her cute eyes again. I love the picture!
So glad to hear that Claire is feeling a little more comfortable. You must be so relieved.
Her "new words" show just what a trooper she is. She's ready to get on with her life. Such a doll!
I'm so happy for Claire and your family. So glad to hear she is improving!
Good job Claire! Glad to hear she's feeling a little bit better! Good to see those eyes! ;)
I think I just pee'd about 500mls!
I love her words. What a precious girl! So glad that the fluid is coming off.
Wow, she is an amazing little girl...but you already know that. We are so happy for Claire!
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