Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.

Saturday, December 19, 2009

Dec 19 11:00 pm

The electrolyte labs they drew again came back within the normal range. Phew. Her creatine (which measures her kidney function) is .02. Wow. That is amazing. The first time in her life her kidney function has been normal!!! She's still on the oxygen to help her breath. Keep on keepin' on, Claire!!
Posted by at

3 comments:

Adrianne said...

Thanks so much for posting the updates! Yahoo for good news!

December 19, 2009 at 9:27 PM
Marshall n Mylinda said...

What a doll! And WHAT a Trooper! So glad to know things are progressing in the right direction. We'll keep her in our prayers.

Mylinda:)

December 19, 2009 at 11:05 PM
M said...

Amazing! I'll keep her in my prayers tonight.

December 20, 2009 at 12:13 AM

Post a Comment

Subscribe to: Post Comments (Atom)