Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Thursday, December 24, 2009

the funny faces of Claire

I put vaseline on her chapped lips and after a few minutes this is what happened.



The best part is thinking of Jared on the other side doing the exact same thing!

3 comments:

Momster said...

I just had to check back in to see how little Claire was doing. She looks so much more comfortable in this video. So cute!

Amy said...

I just love her! I wish I had something for her this Christmas! HAPPY CHRISTMAS CLAIRE!!!

Marshall n Mylinda said...

lol...what a doll! She is such a qt!