Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Friday, December 18, 2009

Dec 18 a.m.

The liver is done. They are working on the kidney now. Everything has been stable throughout the night.

6 comments:

** Adrian ** said...

While reading your last post & now this one I, too feel the peace of the comforter. What an amazing blessing! I am still praying CONSTANTLY for everyone!! I'm happy to hear that everything has been stable so far. I could hardly sleep last night. . . I can't imagine what your night has been like. I hope you were able to get at least a little rest. I can't believe it's REALLY HAPPENING! CLAIRE IS GETTING HER TRANSPLANTS!!! What a miracle! Love you guys!!

Philip, Melissa, & Summer said...

Oh my! I haven't been on the computer in a few days. I am so happy for her. What a wonderful Christmas surprise. We will be thinking of you guys and praying for Claire.

I seriously could just bawl right now. That is so awesome and so inspiring.

Melissa said...

I am bawling right now. I pray everything will continue to go well with the surgery. I'm so happy sweet Claire is finally getting her transplants!

Anonymous said...

This is so comforting to hear. Thank you so much for the update. Can't stop thinking about you guys and how you must be feeling right now. I'm sure words cannot even begin to explain. We're still praying for everyone.

Erica (Blackburn) Holmes & Family

Tharp Family said...

WOW what a Christmas miracle, I am so glad for you all. I just watched the little video of "A day on dialysis" and that is so amazing what Claire has gone through every day for so long, and how hard that must be on all of you. I just had to go peek in at Berlin sleeping in her crib and say a little prayer of gratitude that she's safe and healthy at the moment, life can turn on a dime and right now I'm just so happy you have gotten a call that is going to change your lives back in the right direction. Love and blessings!

Ryan & Keri said...

We are praying, Natalie. We love your family so much, and have faith in Heavenly Father's plan for you guys and your precious Claire.