Benson and Claire were born with a rare genetic disease in which their liver produces too much oxalate--called primary hyperoxaluria. Claire's condition has progressed much faster than Benson's. She was on dialysis since she was 3 months old and for much of that time, did dialysis 3 hours a day, 6 days a week. She receive a much needed kidney / liver transplant on December 18, 2009. It is expected Benson will eventually need similar transplants.


Friday, December 18, 2009

Dec 18 10:30 am

We just met the family whoes daughter received the other half of the liver that Clarie got. What a sweet connection we will have with that family. Both our daughters, her's 2 1/2 and Claire just over 2, will always have something in common. Their little girl has been waiting for a liver for over a year now and her health was declining. How happy we are that the liver was able to used for both our princesses!!

The surgery is over. They were closing up her tummy about an hour ago and she'll be in the recovery room for about an hour....so hopefully we'll see her soon! As far as we've heard, everything went well. What joy and peace we feel. There will still be bumps on the road to recovery but at least the big surgery is over!!

18 comments:

Lauren said...

Wow. God bless Claire!

~adelle said...

Speaking of bumps, they are covering my body. All over. Chills. I am so happy things went well. Relief. Joy. Hope. Gratitude. I am so happy for you. What a day. The perfect Christmas gift. I will continue to pray for a wonderful and smooth recovery. Love you.

Rebecca said...

I'm so so happy everything went well, I've been constantly thinking about you guys!! I can't believe she has a new liver and kidney, what an amazing Christmas present. And that's so awesome one liver saved two lives. I just can't stop crying, I'm so happy :):)

Shari said...

I am so glad that things went well. I have been following your story for months when my sister (Kristen Gummow Bolke) told me about it. I am so happy for you and will continue to pray for you. Thanks for letting us follow your story and be uplifted by your faith and courage. Good luck in the upcoming days and weeks.

RicAnn said...

That is amazing! You guys are all amazing all 4 of you. Hope the recovery is quick and painless for that lil' ball of life. What a sweet girl.

Loves
xoxo
RicAnn

** Adrian ** said...

I have chills, too. EVERYWHERE! I love that feeling! It is so great that you were able to meet the parents whose daughter received the other part of the liver! I can't seem to stop tearing up this morning. I feel such an OVERWHELMING sense of peace, hope & JOY! I will keep praying for a smooth recovery!! I've also been praying for the donor family. What a hard time of year to lose a little one. I hope they are feeling comfort, too. My thoughts are with you!!! xoxo

anjie said...

Wow!! I hope she has a smooth recovery!!!! You are all in our prayers!

Mary said...

I still can't believe all that has happened in the last few hours! Amazing! So quickly your life has changed...and we will continue to pray that she will have a swift recovery! We love you guys and want you to know that you are ALWAYS in our thoughts and prayers!!! What a truly joyus day it is!

Crystal Taylor said...

Tears of joy and peace...
What a Christmas to remember:)
Thinking of you...
Crystal

Lonni said...

We're rejoicing with you!!! What an amazing Christmas present. Claire is always in our thoughts and prayers back here at TCH...we miss you guys!

Anonymous said...

This is great news! We've all been praying so hard for you guys! Our prayers will continue for the recovery. Love and hugs!
The Stutz family

Amy said...

Can't even describe how happy we are for your family!!!

Katie said...

What an amazing gift. Thank you for sharing her special life with all of us. Best of luck with recovery and the rest of an amazing life!

Ryan & Keri said...

So glad to hear.

Auntie Em said...

Best. Christmas. Present. Ever!!

M said...

I'm so happy for you! What a blessing!

Sara said...

Yay! We are so happy for you all especially little Claire!! What a relief!

Jenny said...

It seems that the whole country is celebrating for you... from coast to coast! It feels like there is happy energy in the air in my home today, and it's because of your miracle!
My heart is tender and full-- full of gratitude for a successful surgery, for competent and trained surgeons, for the gift of life, and for your beautiful daughter and the promise of health for her.

My prayers continue for you.